I apologize for the delay on posting. Metro is an outstanding facility but they unfortunately do not have laptops on lend to the family so I’m stuck waiting until I’m home to write.
This morning was a bit alarming because I received a call around 7:30am from the hospital telling me that four of Scotts five lobes in his lungs collapsed. His heartbeat went really low and blood pressure dropped with it. While they were able to quickly stabilize his heart and blood pressure they needed my permission to do a procedure to clean the phlegm from his lungs. Due the pneumonia Scotts lungs were full of thick mucus plugs that he is unable to cough up due to the inability to use the muscles required to make a productive cough. I agreed to the procedure and hurried over to the hospital.
Scott was quite shaken up over the rough night he had. His confidence seems to be shaky because he feels he is not progressing in the right direction. I remind him that this is a long road full of many steps forward as well as many steps backward. He is struggling to maintain a positive attitude because he is facing a vast unknown. Patience is not Scotts strongest attribute but it is one that he is being forced to learn.
Scott really likes when I talk or read to him because my voice tends to calm him and helps him rest. I tease him that it’s probably good I’m not a teacher or I’d be in trouble!!! Oftentimes the stories I tell him are about the beautiful, inspiring messages you all post. Mom Fedor printed a small stack of messages for us to read to Scott so that he grasps how much he is loved, admired, and cherished. Scott was so touched by the messages and we had only made it through the first two days of the guestbook. He asked me to thank everyone for the prayers. He asked me to ask you all to please continue praying because this is a really scary time. I promised Scott we will pray him through this.
Despite the rough evening/early morning Scott had a pretty good/stable day. He was exhausted today because he didn’t sleep last night and his body is still fighting the pneumonia and blood infection. We talked a lot and he had me laughing really hard several times. I’ll share one of those moments…Scott has a suction in front of his mouth so he can allow it to suction the phlegm that gets into his mouth. The suction has a tendency to slip out of the reach of his lips so I was trying adjust it for him. He had the radio on and it was set to one of those love song type of stations. Unchained Melody came on and while I was fixing the suction I glanced down at Scott. He had his eyebrows knitted together, his eyes were clenched shut and his mouth was widely lip syncing the words into the suction as if it were a microphone! We both started laughing hysterically! It felt so good to laugh with him. It’s been a long time and that is such staple of our relationship. For a moment it felt like we were just us again.
I also had a good day today for several reasons. First of all, Scott and I are doing awesome with communication. I’m becoming a pro with this lip reading stuff so don’t talk about me across the room cause I’ll be able to know what you’re saying;) It’s so nice to seek his advice again, encourage him, understand his fears, pray with him and laugh with him. Secondly, my brother and Amanda brought Kingsly home! It’s so nice to have her back. I know she enjoyed her time with Aunt Amanda and Uncle Rob but having her back is bringing some normalcy to my life. There is something about animals and their unconditional love that gives me a great sense of peace.
It’s getting quite late so I need to get some rest so I can be the best I can be for Scott. Thank you all so much for the messages. Scott loves hearing them and asks me to read many of them over. They are touching his heart as they do mine! Please keep the prayers coming! Remember…I promised Scott we would all pray him through this!